Monday, April 13, 2026

Suzette Baker and the Power of the Village

The Strength behind Survivorship
How Family Systems Shape Outcomes in Cancer Survival and Recovery

By: Lennard M. Goetze, Ed.D

In the public narrative of cancer survivorship, the spotlight almost always falls on the patient—the fighter, the survivor, the individual who endures diagnosis, treatment, and recovery. But behind many of these stories lies a quieter, equally powerful force: the family. In the case of Scott Baker—a four-time cancer survivor—his journey cannot be understood without recognizing the unwavering presence of his wife, Suzette Baker.

Suzette did not set out to become a caregiver, an advocate, or a central pillar in a medical battle. She simply became what the moment required. And over time, that role evolved into something far greater—a model of what true support looks like when cancer enters a home.

Their story began long before the word “cancer” was ever spoken. Suzette met Scott in 1996. By 1999, before they were even married, their lives were abruptly altered. Scott was diagnosed with Non-Hodgkin’s lymphoma after severe abdominal pain led to the discovery of a tumor that had already spread.

For Suzette, this was not only her partner’s first confrontation with cancer—it was hers as well. There was no prior roadmap, no family history to guide her response. But what she did have was instinct. And that instinct was simple: do whatever it takes.

From the very beginning, the mindset was not rooted in fear, but in action. Together with Scott’s family, particularly his father, they made decisions quickly, sought out the best care available, and committed fully to the treatment process. There was no hesitation, no second-guessing. There was only forward motion.

“We were just going to do whatever it took to get him better,” she recalled.  That first battle ended in what many families hope for—a sense of closure. Scott recovered, they married in 2000, and life resumed. Like so many others, they believed the ordeal was behind them. But cancer had other plans.


When Survival Becomes a Way of Life
Over the years, cancer returned—not once, but multiple times. Each recurrence brought new uncertainty, new treatments, and new challenges. Yet what remained constant was Suzette’s role. She did not fight cancer in the clinical sense. She did something just as critical: she made it possible for Scott to fight.

When Scott entered treatment again—particularly during the aggressive recurrence in 2012 that required a stem cell transplant—Suzette transformed into the operational backbone of the household.  She made a conscious and deliberate decision: Scott’s job was to get better. Everything else would be hers.

“I tried to get him to focus on getting better… and I took on everything else,” she explained. That “everything else” was not small. It meant raising two young children. Managing a home. Handling finances. Coordinating care. Navigating hospital systems. Tracking medical information. Acting as communicator, decision-maker, and emotional anchor—all at once. And perhaps most importantly, it meant shielding Scott from the noise of daily life so that his energy could be directed entirely toward survival.


The Philosophy of One Day at a Time
In the face of repeated diagnoses and long treatment cycles, Suzette developed a philosophy that would become one of her most powerful lessons for others: Do not live in the future. Live in the day.

“Each day you get up in the morning, you figure out what you need to do for that day,” she said. “You can’t worry about six months from now or two years from now—because no one knows.”  This mindset was not abstract—it was practical survival strategy.

Cancer introduces overwhelming uncertainty. Prognoses shift. Outcomes remain unknown. For many families, the weight of “what if” becomes paralyzing. Suzette’s approach cut through that paralysis. By narrowing focus to the immediate, she created clarity in chaos. Each day had tasks. Each day had purpose. And each completed day became one step forward.


It Takes a Village
If there is one message Suzette emphasizes above all others, it is this: No one survives cancer alone.

During Scott’s most critical periods—especially when treatment required extended stays in New York City—Suzette relied heavily on a network of support. Her parents stepped in daily, caring for the children, maintaining stability, and ensuring that family life continued despite disruption.

Friends became essential contributors—driving children, preparing meals, assisting with logistics. Even small gestures carried immense weight. “It’s the little things,” she said. “Picking up the kids from school, making a meal… anything they can do to help is very supportive.”

For Suzette, one of the most important lessons was learning to accept help. Many caregivers resist this at first, believing they must carry everything themselves. But cancer is too complex, too demanding, and too relentless for isolation. “You need a village. You really do,” she affirmed.  This concept—often spoken, rarely fully embraced—became the foundation of Scott’s survivorship.


Advocacy in Action
Beyond emotional and logistical support, Suzette also became Scott’s medical advocate. During some of the most intense phases of treatment, Scott was unable to fully communicate or track his own condition. Suzette stepped in—attending every appointment, taking detailed notes, documenting symptoms, and ensuring continuity of information across providers.

“I would keep track of everything… so that he knew what he was going through,” she explained.  This role is often overlooked, yet it is critical. In complex cancer care, information gaps can lead to confusion, miscommunication, or delays. Suzette ensured that no detail was lost. She became his voice when he could not speak—and his memory when he could not recall.


Family as a Healing Force
Perhaps the most profound impact of this journey can be seen in the Baker children. Though young during much of Scott’s illness, they absorbed the experience in ways that shaped their character. They witnessed resilience. They saw determination. They learned what it means to face adversity without complaint.

“They saw someone who was very strong… very determined to get better,” Suzette reflected.  Rather than fracturing the family, cancer strengthened it. The children developed maturity, empathy, and leadership—qualities that continue to define them today. One now serves as a mentor in his academic program, a reflection of values cultivated during those difficult years. This is the often-unspoken outcome of collective struggle: when supported properly, it can build—not break—the family unit.


Love as a Constant
At the heart of Suzette’s story is something deeply human and profoundly simple: love expressed through action. Her caregiving was not performative. It was not strategic. It was natural—rooted in how she was raised and who she chose to be. 

“I’ve always been a caretaker,” she said.  That identity, shaped by a close-knit upbringing and reinforced through experience, became the quiet force that carried her family through four cancer battles.


A Model for Survivorship
Today, Scott Baker stands as a powerful example of survivorship—living, active, and committed to helping others. But behind that success is a structure that made it possible. Suzette Baker represents the unseen architecture of healing:  The Organizer  |  The Advocate  |   The Stabilizer  |  The Protector  |  The Quiet Strength Behind the Fight! Her story offers a critical reminder to the cancer community: Survivorship is not an individual achievement—it is a collective effort. It is built through partnership, sustained through community, and strengthened through love. And in the most difficult moments, it is the village that makes survival possible.

 

Part 2: From the Survivor

A Tribute to the Caregivers Who Hold Us Together

By Scott Baker

When people talk about cancer, they often focus on the patient—the diagnosis, the treatment plan, the surgeries, the fear, the recovery. And rightfully so. But there is another side to every cancer story that deserves equal recognition: the caregiver. The spouse. The family member. The one holding everything together while their own heart is breaking. In my case, that person was my wife.

I’ve said many times that I never could have gotten through my illness without multiple people helping us, but she was the center of that support system. Our children were only five and seven years old at the time. While I was fighting to survive, she was making sure our family continued to function. Her parents stepped in. Friends drove the kids where they needed to go. It truly took a village—but she was the force organizing it all.

What she gave me was something priceless: the ability to focus on healing. When things were at their worst, I was trying to make it through one day at a time. I did not have the strength to worry about schedules, doctors, children, finances, or logistics. She carried those burdens so I could direct every ounce of energy toward survival.

Caregivers fight their own battle. They live with the same uncertainty, the same fear, the same sleepless nights. But they must do it while appearing strong, while making decisions, while comforting everyone else. That is a different kind of courage—quiet courage.

My wife was more than emotional support. She became an administrator, advocate, researcher, and protector. When medical handoffs were not seamless, she pushed for answers. When I was unable to think clearly, she kept records, notes, and timelines. She found pathways to major care centers and made connections I could not make for myself. She became the bridge between crisis and hope.

I also know not every story ends this way. Along the journey, I met many women whose husbands left them during treatment or shortly after diagnosis. I saw the devastation that abandonment causes on top of illness. Those stories are real, and they are heartbreaking. Cancer can either pull families together or expose cracks already there. That is why I write this with gratitude.

To every spouse who stays. To every partner who drives to appointments, makes meals, handles fear in silence, and keeps the household standing—you are heroes too. My story had a happy ending because love stood its ground. And for that, I will always be thankful to my wife, and to all caregivers who choose loyalty when life becomes hardest.


From the Publisher

On Family, Courage, Hope and the Healing Power of Presence

By: Dr. Robert L. Bard

In medicine, we often measure outcomes through scans, laboratory values, pathology reports, and timelines of remission. These are important tools. They help us understand disease and track progress. But after decades of caring for patients facing cancer, I can say with certainty that some of the most powerful forces in survivorship are not found on any imaging screen. They are found in the people standing beside the patient.

Family matters. Love matters. Presence matters.

Suzette Baker’s story reminds us of something the medical world sometimes underestimates: cancer is rarely fought by one person alone. While one individual may carry the diagnosis, the emotional weight, logistical burden, and daily battle are often shared by spouses, children, siblings, parents, and friends. Her phrase—“the village”—is one of the most accurate descriptions of survivorship I have ever heard.

I have seen this throughout my career. In my office, it is common for a patient to arrive for a second opinion accompanied by a spouse holding folders of records, a notebook of questions, and concern written across their face. I have seen husbands quietly holding their wives’ hands during difficult conversations. I have seen wives who know every medication, every symptom, every milestone of treatment because they have been present for every step. I have seen adult children who become advocates overnight. These are not minor details. This is medicine in its most human form.

“There is no medical school for being a caregiver,” I often tell families. “Yet some of the finest care I witness comes from the people who simply choose to show up every day.”

That consistency is priceless.

A patient gains strength when someone is there repeatedly—not only during emergencies, but during routine appointments, annual screenings, surveillance visits, moments of fear, and moments of hope. Consistency tells the patient: You are not carrying this alone.

The Power of Hope

Hope is not denial, and it is not fantasy. Hope is a biological and emotional asset. It changes posture, breathing, energy, decision-making, and the willingness to continue. I have seen patients walk into my office defeated and walk out standing taller simply because they now understand their condition and know there is a plan. That shift matters.

When families bring hope into the room, they become part of the treatment environment. A hopeful spouse can calm fear. A hopeful parent can steady chaos. A hopeful family can help a patient tolerate uncertainty with greater resilience. Hope does not promise outcomes—but it fuels endurance. I often say, “When science meets hope, the patient has a better chance to fully engage in healing.”

Communication is equally vital. Families who talk openly, ask questions, share concerns, and listen to one another create a healthier environment for healing. Silence can isolate. Connection can restore. I encourage every family to learn together, attend appointments together when possible, and redefine togetherness through active participation in the healing journey.

I have also learned that caregiving requires courage. It takes courage to remain calm when you are frightened. It takes courage to be steady when the future is uncertain. It takes courage to listen, adapt, and continue loving through fatigue and stress. This is a sophisticated form of strength that deserves far more recognition.

Suzette Baker exemplifies that strength. Her support of Scott through multiple cancer battles represents an advanced form of love—one rooted in loyalty, discipline, compassion, endurance, and hope. She did not merely stand beside a survivor; she helped build the environment in which survivorship could happen. For that reason, I applaud her. She is more than a devoted spouse. She is a role model for partners, families, and loved ones everywhere. Her story teaches us that sometimes the greatest medicine in the room is the person who never leaves it.

 

Monday, March 2, 2026

Spotlight: Scott Baker- 4x Cancer Survivor

Still Breathing, Still Fighting:
The Unbreakable Story of Scott Baker

From an exclusive interview by: Lennard M. Goetze, Ed.D

SCOTT BAKER does not speak like a man who has faced death four times. He speaks like someone who has met it, studied it, and decided it would not define him. “My name is Scott Baker. I live in upstate New York, near Albany,” he begins simply. But the story behind that introduction spans nearly three decades of resilience.

In August 1999, chronic abdominal pain sent Scott to the doctor. By September, he had a diagnosis: Stage III non-Hodgkin’s lymphoma causing a small bowel blockage. Surgery. Chemotherapy. Radiation. Remission. Six years later, it returned.

A tumor sat on his kidney. More chemotherapy. His first autologous stem cell transplant in 2007. Then, in January 2012, came the most devastating diagnosis yet: primary central nervous system lymphoma. A tumor had formed in his right temporal lobe.

“I kind of made a mistake,” Scott reflects. “I should have went to Sloan Kettering right out of the gate.”

At the time, he and his wife were raising five- and seven-year-old boys. He chose to stay local for treatment. The consequences were nearly fatal. “It required an expert because in 2012 CNS lymphoma was still incredibly rare,” he explains.

When chemotherapy stopped, the cancer came roaring back. Scott blacked out during the summer of 2012. For three months, he was gone — physically present, but lost. His wife brought him to Memorial Sloan Kettering. He spent seven weeks on the neuro-oncology floor. “Forty-four people collected on this floor, all with some form of brain cancer. And we all deeply cared for one another.”

He achieved remission again. Then came his second transplant. He was discharged January 14, 2013. By that fall, he returned to work. Six months ago, he retired — on his own terms. Today, nearly 27 years after his first diagnosis, Scott remains in remission.



The Two Days That Almost Broke Him

For a man who endured surgeries, radiation, transplants, and relentless chemotherapy, it wasn’t the physical pain that marked his lowest point. It was hopelessness. “I had about two days of my life where I had no hope. And that was the lowest point of all the cancer diagnosis and the chemos and radiations and surgeries.”

He remembers reading prognosis data about primary CNS lymphoma. Every article predicted 12 to 18 months. “That was a horrible feeling.” But Scott did not stay there. “If you’re breathing, there is hope.” That sentence has become the backbone of his advocacy.


The Mayor of M7

Scott could not wear a white coat. He could not prescribe medicine. But he discovered something equally powerful. Community. During his extended hospitalization, nurses began calling him “the mayor” of the neuro-oncology floor. “I was out in the hallway cheering people on,” he says. “I wanted to see them do well and they wanted to see me do well.”

Some patients spoke different languages. It didn’t matter. “We could root for each other without even speaking the same language.” That experience reshaped him.

“When I was a young man, I was selfish,” he admits candidly. “I just feel a thousand times better since I got outta the hospital because the people that cared for me inspired me.” Helping others, he says, makes it easier to sleep at night.


From Survivor to Advocate

Scott’s advocacy began almost immediately after discharge. “The first thing I did right out of the hospital after I went to PT is I joined the Livestrong at the YMCA program in the spring of 2013.”

After completing the 12-week program, he became a mentor — a role he has continued for years. “I’ve definitely met over 500 people in that program,” he says.

Livestrong is structured as a physical recovery initiative, but for Scott, it became something deeper. “There’s nothing better than being with other people going through the same thing.” He also serves on the board of a nonprofit called Wicklund Warriors, named after founder Deanna Wicklund, who also underwent a bone marrow transplant. The organization provides financial assistance to blood cancer patients who lose income during treatment.

“You know how quickly people can go broke just from the logistics of blood cancer,” he says. But he is clear: the money is not always the most powerful medicine.

“Having a living, breathing survivor in front of them seems to help people more than the cash.”


The Power of Showing Up

Scott frequently participates in stem cell donor registry drives, working with an organization such as DKMS. He prefers to call them “stem cell drives” instead of “bone marrow drives.” “Bone marrow is off-putting to a community that you're trying to get to donate. It sounds horrible. Stem cell sounds a little more agreeable.” His motivation is simple.

“Every time somebody puts their registration and their swabs in that envelope, somebody else has a chance at life. And man, does that feel great.” He especially enjoys speaking to college students.

“I love young, healthy people. I like it when I see somebody’s eyes light up when they’re like, ‘Wait, you went through this and you did how many chemos?’” His response is consistent:

“There’s nothing special about me. You can do it too. And it’s worth it.”


Life Is Worth the Fight

When asked directly to speak to someone who feels hopeless, Scott does not hesitate. “If you’re breathing, there is hope.” He acknowledges the darkness. He felt it himself.

“But it’s not necessary. There is so much hope.” He believes research is advancing daily.

“There’s people in these labs… they’re all part of my army. They kept me here for nearly 27 years since my first diagnosis.” His reasons for living evolved over time. Early on, it was pure love of life.

“I’ve always loved life. Life is worth living.” Later, it was his sons. His father, whom he lost to cancer in 2001, became another anchor. “I wanted to be that for my boys.”

Today, service fuels him. “Helping people has made my life magnitudes better.”


Beyond Medicine

Scott does not minimize the power of medical science. Transplants saved his life. Expert care saved his life. But he has learned something medicine alone cannot prescribe. Presence. “I can’t wear a long white coat or scrubs, but maybe there’s another way I can be helpful.” There is.

The man who once faced a dismal prognosis now sits across from newly diagnosed patients in infusion centers, hospital rooms, or even Starbucks. He tells them what they need to hear: “I made it. You can make it.” He is proof — not theory.



The Living Message

Scott Baker’s story is not one of denial. He knows cancer’s brutality. He has lived inside its machinery. Yet his message is steady, unwavering. “If you’re breathing, there is hope.” In hospital corridors, at fundraising events, in college auditoriums, and in quiet one-on-one conversations, he continues to carry that message.

A man who once blacked out for three months now stands firmly as a light for others. He does not call himself extraordinary. “There’s nothing special about me.” But to the hundreds of patients who have sat across from him and seen a living example of survival, he is something rare: A reminder that life is worth fighting for.

 

 

PART 2

The Courage to Stand and Speak

By: Dr. Robert L. Bard

There are moments in my work when I encounter someone whose story stops me in my tracks. Scott Baker is one of those people.

I have met countless patients, survivors, clinicians, and advocates over the years. I have seen bravery in hospital rooms and despair in waiting rooms. But what struck me about Scott was not just that he survived cancer — it was how he chose to live afterward.

Scott has faced lymphoma multiple times, including a brain tumor that nearly took his life. He endured surgeries, chemotherapy, radiation, two stem cell transplants, and the psychological weight of a prognosis that once read “dismal.” Yet when he speaks, there is no bitterness. There is resolve. There is clarity. There is purpose.

That is will. That is courage. That is resilience. But perhaps most importantly — that is advocacy.

We often think of advocacy as lobbying, fundraising, or leading organizations. And yes, Scott does those things. He mentors through Livestrong. He volunteers with Wicklund Warriors. He organizes stem cell registry drives. But in my view, his most powerful act of advocacy is something far simpler and far more profound:

He tells his story.

When Scott sits across from a newly diagnosed patient and says, “I made it. You can make it,” he is performing a humanitarian act. He is interrupting fear. He is challenging despair. He is offering living, breathing evidence that a diagnosis is not a verdict.

Sharing one’s story after surviving something deadly is not self-promotion. It is service. There are people who, upon hearing the word cancer, feel their world collapse in a single instant. Some quietly give up. Some lose hope before treatment even begins. Scott’s voice pushes back against that darkness.

“If you’re breathing, there is hope,” he says. Those words matter. To be an advocate is to stand in the gap between fear and possibility. It is to use your scars as bridges for others to cross. Scott Baker does exactly that — and in doing so, he saves more lives than he may ever know.

 


Friday, February 6, 2026

Grace B. Charrier: From Silent Diagnosis to Global Advocacy

HER LIFE CHANGED NOT BECAUSE SHE FELT ILL—BUT BECAUSE SHE FELL

A slip in her bathroom led to an emergency room visit she assumed would be routine. Instead, that moment triggered a cascade of medical tests that revealed stage III triple-negative breast cancer—a diagnosis that arrived without warning. Grace had no symptoms, no pain, no signs that anything was wrong. As she later explained, “I had no symptoms whatsoever. I didn’t even know I had high blood pressure.”

That absence of warning nearly proved catastrophic. On admission, her blood pressure measured 170/110, placing her at immediate risk of stroke. “I was a walking time bomb,” she would later say, reflecting on how close she came to a second medical emergency she never anticipated.

The diagnosis was traumatic. Cancer was not part of Grace’s imagined future. Yet even in shock, her instincts turned outward. She thought of her children first. “I had to look at my kids and say, listen, I’ve got to be strong for them,” she recalled. Strength, for Grace, was not denial—it was purpose.

From her hospital bed, she began asking herself a defining question: “How am I going to make this less about me and more about the bigger picture?”

That question became the foundation of her life’s next chapter.

Grace’s cancer journey exposed what she now believes is one of healthcare’s most dangerous blind spots: the assumption that illness announces itself. “I’ve come to realize that many women’s health issues are asymptomatic,” she said. “Look at me—I didn’t even know I had high blood pressure.” Her experience reframed her understanding of prevention, particularly for women and underserved communities.

Originally from Africa, Grace was acutely aware that access to preventative education is uneven. “People from my continent are less aware of these kinds of things,” she explained. That awareness shaped her mission—to speak to those who may not have robust healthcare systems but still deserve knowledge. “Even if you don’t have access to care, at least know what to look for. Check yourself. Your diet. Your weight. Bleeding. Fibroids. These things matter.”

Even during treatment—while radiation left her skin peeling and her body exhausted—Grace began writing. “I started writing my book while I was literally peeling all over my bed from radiation,” she said. Writing was not a distraction; it was survival. It allowed her to reclaim narrative control at a time when her body felt dictated by machines and schedules.

That manuscript became her book, launched during the height of COVID on her birthday, June 21. The story traces her path from the fall in her bathroom through diagnosis, treatment, and survivorship. But Grace knew the message could not live on the page alone.

So she found her voice on camera.

“I love podcasts,” she said, “but sometimes you want to see the person. You want to see their reactions. Make it more lifelike.” Her YouTube talk show became a space where cancer could be discussed without fear, where clinicians and patients met as equals.

Grace’s platform quickly grew into a global forum. She interviewed oncologists, public-health leaders, genetic specialists, workplace advocates, and patient navigators from Africa, Europe, Australia, India, and the United States. The topics were expansive and often overlooked: menopause after cancer, sexual health, lymphedema, genomics, immunotherapy, and the realities of managing treatment while holding onto employment.

One issue struck particularly close to home. “I suffer from lymphedema because my lymph nodes were removed,” she shared. “This arm is bigger than the other because of fluid retention.” By naming these realities, Grace dismantled the silence surrounding survivorship.

As a Black woman diagnosed with triple-negative breast cancer, Grace was also keenly aware of disparity. “This cancer affects women like us in the Black community,” she said. Representation, for her, was not symbolic—it was essential.

Cancer, Grace insists, is never an individual experience. Sitting week after week in infusion rooms, she formed bonds with patients facing lung, liver, breast, and other cancers. “When you’re all taking infusions together, you become a community,” she said. “Many of them I’m still very close to today.”

That sense of shared humanity drives her advocacy. “You can’t talk about us if we’re not there,” Grace emphasized. She believes patients must be included in conversations that shape research, policy, and care delivery—not spoken about from a distance.

Ten years after her diagnosis, Grace measures impact differently. She no longer chases subscriber counts or likes. “I stopped looking at the metrics,” she admitted. “I just carry on, putting the information out there.” What matters more are the emails—messages from strangers thanking her for clarity, validation, or hope.

Still, the work is demanding. Grace produces her content independently, from research to graphics. “People think I have a team,” she laughed. “No. I do everything myself.” One day, she hopes for sustainable partnerships that allow her advocacy to continue without burnout.

Looking ahead, Grace is preparing a sequel to her book. “So much has happened since I wrote it,” she said. She wants to explore survivorship more deeply—its emotional complexity, its evolution, and its ripple effects on caregivers. “They are the foundation of where I am today,” she said. “They were there holding my hand when I couldn’t stand on my own.”

Her vision for the future begins at the community level. “Start with your neighbor,” she advises. In Brooklyn, she organizes local walks and awareness efforts, believing that openness creates healing. “It gives me great joy to see people benefit from my openness,” she said.

Grace B. Charrier’s story is not only about surviving cancer. It is about translating experience into service, silence into dialogue, and fear into leadership. From an unexpected fall to a far-reaching platform, she has turned diagnosis into direction—and given countless others permission to speak.

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IMPOSSICANT!: QUIRKY INSPIRATIONAL TALES FROM A CANCER SURVIVOR Paperback – June 15, 2020

by GRACE B. CHARRIER (Author)

It is never easy coming to terms with a cancer diagnosis as this experience will shake any one's world to the foundation. The whole essence of this quirky memoir is to put the reader where Grace was on each step of her journey as reading the book is like having a conversation with her, with a great deal of humor to boot!Do follow this gripping cross-Atlantic tale of resilience, inspiration, humor, and perseverance as it documents the strength of the human spirit. (AMAZON LINK)


ALSO, CHECK OUT GRACE'S ONLINE TALK SHOW @;




AFTERMATH:

A CHAMPION REDEFINING CANCER ADVOCACY

By Dr. Robert L. Bard, MD

Meeting Grace B. Charrier last week through LinkedIn and social media was a reminder of how powerful survivorship becomes when it is transformed into service. Grace does not speak about cancer as a closed chapter in her life; she carries it forward as a living responsibility—to inform, to connect, and to uplift others who may still be in the midst of fear and uncertainty. That posture of leadership is rare, and it matters.

Grace’s journey as a survivor has evolved into a global platform for awareness and education. Through her talk show and outreach work, she brings clinicians, survivors, and advocates into the same conversation—humanizing medicine while elevating credible information. This is not just storytelling; it is public health in action. By making difficult subjects visible—diagnosis, treatment realities, long-term survivorship challenges—she helps normalize conversations that many patients feel isolated in navigating alone.

What stands out most is Grace’s commitment to reach beyond borders and beyond comfort zones. Her mission is global in scope, and her work reflects an understanding that education is often the first form of care. For individuals who may lack access to advanced medical systems, awareness itself becomes a protective tool. By encouraging self-advocacy, early attention to symptoms, and informed dialogue with clinicians, she equips people with agency—sometimes before they even realize they need it.

As a physician, I see tremendous value in voices like Grace’s that help bridge the gap between clinical knowledge and lived experience. Patients listen differently when they hear from someone who has walked the path they fear. Survivors who lead with clarity and compassion become navigators for others, offering perspective when the medical journey feels overwhelming. Grace’s platform fosters exactly that kind of peer-guided resilience.

Equally important is her commitment to continued networking and learning. Survivorship does not end with treatment; it expands into a lifelong search for resources, support systems, and evolving solutions. By actively connecting with clinicians, researchers, advocates, and fellow survivors, Grace models a proactive approach to care that benefits her audience and strengthens the ecosystem of support around them.

Grace’s leadership is not rooted in celebrity—it is rooted in service. Her advocacy turns experience into education and presence into purpose. For those seeking inspiration to keep fighting, to ask better questions, or to simply feel less alone, her voice is a steady reminder that survivorship can become a source of strength for many others who are still finding their footing.

 

REPRISED SURVIVOR STORY:


EDUCATING CANCER PATIENTS IS EMPOWERMENT 101
By: Geri Barish, founder of the Hewlett House

Having survived 5 cancers, it became clear to me that dedicating my life's work to being a support resource to anyone diagnosed with cancer is a calling worth responding. This includes survivors and those who are concerned about recurrence. When we first launched HEWLETT HOUSE back in 1990, we met so many individuals daily- reaching out for help by asking questions like- “HOW or WHY did I get Cancer?”… “What did I do wrong?" - I also get questions like "I found a doctor on the internet... should I believe what he or she tells me?" This indicates the lack of information and guidance out there, confirming MY role in this world with EDUCATION.  Over time, we received great support from the county and the state, and we also met with so many experts like Dr. Robert Bard (cancer radiologist), Dr. Roberta Kline (genomics specialist) who are with us to help answer more questions and bring clinical support to those in need.  Partners like these help to make HEWLETT HOUSE the central hub to all patients and caregivers. 

GETTING A SECOND OPINION
I have and always will be someone who pushes for a second opinion.  You only have one life... once its cut, burn and slash, its too late to turn back!  I have a closet that I call my “Cancer Corner”.  It has all my reports-copies of tests-and everything that is about my disease.  I tell people what if the Doctor retires or moves or you move or the hospital goes out of business-you don’t have to go through all of this again-they can compare-also we pushed for a federal law a  few years ago that the patient can get a copy of his or her pathology report.  I will be happy to tell you why we pushed for this and the result.  We are awaiting for Chuck Schumer to put on the floor the MCED Bill-which is a blood test for 94 cancers that Medicare and Medicaid have to pay for.

HOW EDUCATION CAN MAKE A DIFFERENCE
As advocates, we need to be gentle and precise without instilling fear (there's enough fear-mongering in the "cancer business").  The unknown and the word CANCER is quite chilling. Educating the patient on asking the right questions is first base.  I have always told my patients or people who ask me if I made the right decision in picking this hospital or that doctor instead of jumping into the diagnosis immediately.  Questioning the first doc(s) and going for a SECOND OPINION is extremely important.  When diagnosis first happens, you usually have a little time to make that ultimate decision. I explain that we are all made up of different genes and even though our cancers might have the same name, each person is different. You have to make sure you TRUST your doctor enough to feel that you are in the right hands.  The internet can be dangerous as it does not talk to you personally so the cancer you might have looked up is broad and general.  Know your history when you are speaking to the Doctor. I try to give as much information on the type of Cancer and research.  

I explain Clinical Trials if I see that a patient has been diagnosed with an advanced Cancer. We work with the Key Clubs in Schools on projects to educate on History and Cancer.  We try to help the person understand that they would have a copy of everything that is done including x-rays, blood work, scans, mammos this saves time in getting a second opinion so a new doctor can look at what you just have done.  Patients are often concerned about insurance issues and are often concerned if they are actually covered for their 2nd or even 3rd opinions.  (We found that most can actually be covered, but our work helps the patient get this to happen).

IT TAKES A VILLAGE
I have aligned with some of the most caring alliances like the WOMEN'S HEALTH COLLABORATIVE and NYCRA’s ULTRASOUND COALITION to extend the reach of my care to everyone diagnosed. As the battle rages on, educating and empowering patients make up a vast majority of the fight.  Where something as sensible as getting a SECOND OPINION should be the base action when you get diagnosed, there are still so many out there that are struck with FEAR & DENIAL, or financial struggles... and of course I get involved in those cases also.  But if we all joined hands to tackle such obstacles in this CANCER arena, I can see us getting the drop on this disease.

Published by: the AngioMedical Press- distributed by PinkSmartNews, NYCRANEWS, 2ndOpinionScan.com and The Journal of Modern Healing.



WHAT ABOUT IF YOU'RE TOO YOUNG FOR A MAMMOGRAM?   I went to my doctor for a lump I felt in my breast and she gave me a response that set off red flags: "don't worry about it". Being a researcher involved in breast density and breast cancer, I knew that I had to take action; I was fortunate enough to have my breast ultrasound training with Dr. Robert Bard (cancer imaging specialist, NYC) upcoming in the next week. Dr. Bard showed me how to use the ultrasound to help me find two benign tumors in my breasts, and it was there that he reported that I have dense breasts. Had I not taken action in getting screened at the young age of 22, I would have never known that I should be getting screened via ultrasound every 6 months (because having dense breasts puts me at a higher risk for breast cancer), nor would I have known that I had benign breast tumors. 

- ALEXANDRA FIEDERLEIN, 22
Cancer Researcher/ Graduate- Molloy Univ.



Tuesday, March 18, 2025

A Journey Through Premature Ovarian Failure (and Early Menopause)

Written by: Emanuela Visone

PROLOGUE
Survivors and challengers often share their stories (in print) hoping to memorialize their journey to empower others who feel lost in their health struggles. Mine is a story of resilience and healing and I want people to know there is hope beyond conventional medicine. It became the crossroads that inspired my career as a healer through nature, where the answers I discovered are all from the foods we eat, from better strategies to managing stress and eliminate toxins. If you are going through a similar health crisis, know that there are many answers (more than the conventional) and that you are not alone. Your body has the innate ability to heal. Sometimes, it just needs a little help. Trust in nature, trust in yourself, and never stop searching for answers.

I remember the day like it was yesterday. Sitting in the doctor’s office, nervously awaiting my test results, I heard the words that would change my life forever: “You are experiencing premature ovarian failure.” I was only 38 years old. My mind raced. How could this be happening? My doctor’s next statement shook me: “If you want to have a child, you have a six-month window to try.”

I didn’t have a significant other at the time, but I had a great support system. I decided to embark on the journey of becoming a mother on my own. But the process was grueling. I endured painful tests, including a hysterosalpingogram, where air was blown through my fallopian tubes. Despite all the tests, the only abnormality was my ovaries had failed prematurely.


Understanding Premature Ovarian Insufficiency
Primary Ovarian Insufficiency (POI), also known as premature ovarian failure, occurs when the ovaries cease normal function before age 40, leading to reduced estrogen production and potential infertility.

Smoking is a significant risk factor for early menopause and POI. Studies indicate that women who smoke may experience menopause one to two years earlier than non-smokers. The toxins in cigarette smoke accelerate ovarian aging, contributing to an earlier onset of menopause.

Common symptoms of POI include irregular periods, hot flashes, night sweats, vaginal dryness, irritability, and decreased libido. These symptoms result from decreased estrogen levels and can significantly impact quality of life.

Faced with this reality, I ultimately chose not to pursue in vitro fertilization (IVF) using donor sperm. The emotional toll was heavy, but I found comfort in being an aunt, a godmother, and loving my cousin’s children as my own. Making peace with my decision was just the beginning of my journey.


The Onset of Symptoms and My Search for Healing
As if infertility wasn’t enough, I now faced another battle: menopause at 38. Hot flashes became my unwelcome companions, arriving unannounced and leaving me drenched in sweat. Mood swings turned me into someone I no longer recognized. The bloating, discomfort, and weight gain made me feel trapped in someone else’s body.

Desperate for relief, I turned to alternative medicine. My first stop was a Chinese medicine doctor who prescribed a concoction of bitter herbs. I spent $300 a month on those teas, gagging with every sip. Although I noticed slight improvements, my hormone levels remained unbalanced.

Then, I read about bioidentical hormone replacement therapy (BHRT). Inspired by a well-known actress who had successfully balanced her hormones, I sought out a specialist. Tests revealed another shocking truth, I was also suffering from adrenal fatigue. My cortisol levels were through the roof.

I began taking estrogen, progesterone, and hydrocort (a low dose of hydrocortisone to balance my cortisol). At first, I felt amazing. But over time, I started gaining weight and feeling off. My body was telling me something wasn’t right.

During a routine wellness visit in 2017, my doctor expressed concern about my elevated liver function. When he asked about my supplements, he linked my high liver enzymes to the hydrocort, a steroid. So much for minimal side effects! I had spent thousands of dollars only to discover my treatment was causing more harm than good. I immediately stopped BHRT and turned back to nature for answers.


Returning to Nature for Healing
My mentor had always emphasized the power of food as medicine. She suggested incorporating phytoestrogens naturally through my diet rather than taking soy capsules. But, in my impatience, I ignored her advice and started taking soy supplements.

Within months, I felt terrible. My voice became hoarse, my body ached, and my legs throbbed at night. Heart palpitations and flu-like symptoms plagued me.

One morning, I woke up and noticed lumps protruding from both sides of my throat. I rushed to my doctor, who sent me for a thyroid sonogram. The results were alarming—my thyroid nodules had enlarged, and I had developed a new mass. My thyroid was malfunctioning, sending my cholesterol and hormone levels spiraling.

My doctor referred me to an endocrinologist for a biopsy. But before I went down that road, I had an epiphany. I had healed my dog’s irritable bowel syndrome through diet and supplements. If I could heal my dog naturally, why couldn’t I heal myself?

I dove deep into researching whole foods, enzymes, and gut-healing strategies. I overhauled my diet, eliminating inflammatory foods and focusing on nutrient-dense, alkaline foods. I incorporated superfoods, probiotics, digestive enzymes, and wildcrafted algae to support my gut and endocrine system.

Within months, the transformation was undeniable. My energy returned. My cholesterol stabilized, and I lost 24 pounds. The heart palpitations disappeared. Most importantly, when I went back for my follow-up thyroid sonogram, the mass and nodules had shrunk, and my hormone levels were normalizing.

EPILOGUE
Looking back, my battle with premature ovarian failure, leading to full-blown menopause at 43, adrenal fatigue, and thyroid dysfunction, was a blessing in disguise. It led me to uncover the body’s incredible ability to heal itself when given the right tools.


 

References: https://medlineplus.gov/primaryovarianinsufficiency.html

https://www.sciencedaily.com/releases/2001/07/010716112326.htm

https://www.lancastergeneralhealth.org/health-hub-home/2021/october/one-more-reason-not-to-smoke-early-menopause

https://my.clevelandclinic.org/health/diseases/17963-primary-ovarian-insufficiency

 

 

Monday, January 6, 2025

WISDOM FROM THE HOUSE: WHY GET A SECOND OPINION?

EDUCATING CANCER PATIENTS IS EMPOWERMENT 101
By: Geri Barish, founder of the Hewlett House

Having survived 5 cancers, it became clear to me that dedicating my life's work to being a support resource to anyone diagnosed with cancer is a calling worth responding. This includes survivors and those who are concerned about recurrence. When we first launched HEWLETT HOUSE back in 1990, we met so many individuals daily- reaching out for help by asking questions like- “HOW or WHY did I get Cancer?”… “What did I do wrong?" - I also get questions like "I found a doctor on the internet... should I believe what he or she tells me?" This indicates the lack of information and guidance out there, confirming MY role in this world with EDUCATION.  Over time, we received great support from the county and the state, and we also met with so many experts like Dr. Robert Bard (cancer radiologist), Dr. Roberta Kline (genomics specialist) who are with us to help answer more questions and bring clinical support to those in need.  Partners like these help to make HEWLETT HOUSE the central hub to all patients and caregivers. 

GETTING A SECOND OPINION
I have and always will be someone who pushes for a second opinion.  You only have one life... once its cut, burn and slash, its too late to turn back!  I have a closet that I call my “Cancer Corner”.  It has all my reports-copies of tests-and everything that is about my disease.  I tell people what if the Doctor retires or moves or you move or the hospital goes out of business-you don’t have to go through all of this again-they can compare-also we pushed for a federal law a  few years ago that the patient can get a copy of his or her pathology report.  I will be happy to tell you why we pushed for this and the result.  We are awaiting for Chuck Schumer to put on the floor the MCED Bill-which is a blood test for 94 cancers that Medicare and Medicaid have to pay for.

HOW EDUCATION CAN MAKE A DIFFERENCE
As advocates, we need to be gentle and precise without instilling fear (there's enough fear-mongering in the "cancer business").  The unknown and the word CANCER is quite chilling. Educating the patient on asking the right questions is first base.  I have always told my patients or people who ask me if I made the right decision in picking this hospital or that doctor instead of jumping into the diagnosis immediately.  Questioning the first doc(s) and going for a SECOND OPINION is extremely important.  When diagnosis first happens, you usually have a little time to make that ultimate decision. I explain that we are all made up of different genes and even though our cancers might have the same name, each person is different. You have to make sure you TRUST your doctor enough to feel that you are in the right hands.  The internet can be dangerous as it does not talk to you personally so the cancer you might have looked up is broad and general.  Know your history when you are speaking to the Doctor. I try to give as much information on the type of Cancer and research.  

I explain Clinical Trials if I see that a patient has been diagnosed with an advanced Cancer. We work with the Key Clubs in Schools on projects to educate on History and Cancer.  We try to help the person understand that they would have a copy of everything that is done including x-rays, blood work, scans, mammos this saves time in getting a second opinion so a new doctor can look at what you just have done.  Patients are often concerned about insurance issues and are often concerned if they are actually covered for their 2nd or even 3rd opinions.  (We found that most can actually be covered, but our work helps the patient get this to happen).

IT TAKES A VILLAGE
I have aligned with some of the most caring alliances like the WOMEN'S HEALTH COLLABORATIVE and NYCRA’s ULTRASOUND COALITION to extend the reach of my care to everyone diagnosed. As the battle rages on, educating and empowering patients make up a vast majority of the fight.  Where something as sensible as getting a SECOND OPINION should be the base action when you get diagnosed, there are still so many out there that are struck with FEAR & DENIAL, or financial struggles... and of course I get involved in those cases also.  But if we all joined hands to tackle such obstacles in this CANCER arena, I can see us getting the drop on this disease.

Published by: the AngioMedical Press- distributed by PinkSmartNews, NYCRANEWS, 2ndOpinionScan.com and The Journal of Modern Healing.