VIDEO: "PATH TO RECOVERY STARTS WITH A SECOND OPINION" by: James Hunt

 

STEPPING UP MY OWN RESEARCH

by: James Hunt (originally published March, 18, 2018)

I want to tell my story so that I can help others diagnosed with prostate cancer. This all started with a routine physical with blood work. My primary care physician called to say everything looks good except a slightly elevated PSA and suggested I make an appointment to see a urologist. After spending months on antibiotics to treat a possible infection of the prostate due to bike riding, my urologist suggested a biopsy. The biopsy was one of the worst things I’ve ever experienced in my life. The biopsy results showed a Gleason 6 cancer in one of the 12 tissue samples taken from me.

The urologist suggested active surveillance where we would monitor the cancer with blood tests, MRI’s and biopsies. He mentioned that I would eventually need surgery- probably within a year or two. I reached out to one of my chiropractor friends for some advice (Dr. Mark Jones of Wading River) who is quite knowledgeable in Holistic medicine and he suggested; Pomi-T a dietary supplement that was used in a study (in prison) that was proven to slow the growth of prostate cancer. He also told me about Chaga Tea - brewed from the Chaga mushroom that grows on birch trees in Canada. I connected with Debbie Falborn from Chaga Island who told me "we will beat this". They helped me put together a plan that consisted of drinking 24oz of chaga tea a day along with daily supplements of Glutathione, Vitamin B complex and Magnesium powder (Calm).

I also spoke to another friend, Dr. Keith Gutzmann whose practice,

"...to everyone battling cancer --
stay smart, realistic... do
your own research and follow your
gut for what makes the most sense."

The Howard Beach Comprehensive Health Care Center is tailored towards Holistic Health and Wellness.  Dr. Gutzmann suggested a number of nutritional supplements. Curcumin, Boswellia (Indian Frankincense), Ginger, Fish Oil, and Vitamin D3 for their anti-inflammatory effects.  Indole-3-carbinol, Vitex, and Saw Palmetto for their hormone modulating effects. There were a number of other supplements he suggested that I found to be echoed later by other sources as I continued my research. Dr. Gutzmann then strongly suggested a Ketogenic dietary strategy (low carbohydrates and sugar) with concomitant periods of Intermittent fasting. Lastly, he suggested I look into getting a DVD of a film by Peter Starr called "Surviving Prostate Cancer Without Surgery, Drugs or Radiation". I found this on Dr. Mercola’s website. One Friday night at 8pm my urologist called me to tell me that a second part of my biopsy reveled a more aggressive cancer and that I really need to consider surgery sooner rather than later. I had just started to feel right mentally and now this. My surviving prostate cancer DVD came and I watched it. The first thing Peter Starr said is that "you have time... you are not going to die tomorrow". He also explained how these doctors will attempt to scare you into doing some sort of treatment right away.

I learned from the video a few other key supplements that are proven to slow the growth of cancer Vitamin k2, Vitamin D3, pumpkin seed oil, Vitamin C, Flax Seed Oil, Coenzyme Q10, Neprinal AFD and Lycopene. I also learned about gut health and the need to take Probiotics (Syntol AMD). The film taught me a lot how sugar feeds cancer. I also learned of an ultrasound machine called a 3D color Doppler which Peter Starr explained is a noninvasive way of checking cancer growth without having to go through biopsy and long MRI’s.

I went online to try to find this machine and all I could come up with was the prostate cancer research institute in California. I felt that wasn’t an option for me at the time and took another suggestion of Peter Starr’s and to get a second opinion. I made an appointment with another urologist that came highly recommended. He read my reports and test results and was surprised that the first urologist was pushing for surgery. He said we will do active surveillance with blood work, MRI’s and biopsy’s. Here I was again hearing the word "biopsy". I had done plenty of research on the internet and all I kept reading is that there is a chance of spreading the cancer with biopsy’s. The second urologist said I’ll see you in six months your prostate needs to heal from the biopsy before we can do the MRI.

In the six months I completely changed my diet starting with giving up all processed foods. I started a meal plan that consisted of wild caught fish, chicken and bison that were antibiotic and hormone free, organic vegetables and foods containing healthy fats avocado, cashews and macadamia nuts. I cut all sugars from my diet including those from fruits. My fruit intake was limited to berries occasionally. Getting close to my MRI appointment and thinking this was going to be my only option.

After much research and a referral from my wife's fundraising circle, I came across Dr. Robert Bard a seasoned radiologist in midtown Manhattan that has written books on prostate cancer and has a 3D color Doppler! I made an appointment and went in for the ultrasound. My experience with Dr Bard was excellent the procedure took all of maybe ten minutes. After the procedure I sat with Dr. bard to go over the results, he found a small spot which he said did not look like active cancer cells maybe a scar left from the biopsy. Dr. Bard said we would do active surveillance and watch it that I had nothing to worry about. Dr. Bard has done extensive research on prostate cancer and has come up with his own supplements that he formulated for prostate cancer. A lot of the ingredients in his pills are what I’ve been taking. I’m starting his supplements right away and finishing up what I have. As of right now I have no active cancer and happy I got a second opinion.

My message to everyone battling cancer is to stay smart and realistic. Do your own research and listen to the right people and follow your gut for what makes the most sense.  The resources are all around us and thanks to the world wide web, we have some of the best information available to win this.  Perhaps it was the research that made me push for a second (and even a third) opinion and I'm glad I did- because if I would have caved to the panic-stricken voice of my first doctor, things may have turned out very differently- or worse.

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HIFU: THE NEXT WAVE OF NON-INVASIVE CANCER TREATMENT 

By: Dr. Robert L. Bard 

Prostate cancer, certainly the most common cancer among men, might be considered a two-headed hydra. On the one hand, some of these tumors, especially among African-Americans are aggressive, resulting in premature death. On the other hand, many of these tumors are slow growing and for a significant subset of patients, watchful waiting is recommended. But it is difficult to watch and wait when you believe that a cancer is growing within.

The quest for minimally invasive treatments of prostate tumors has been ongoing since the 1990’s. There have been advocates of focal freezing as well as heating of prostate tissue that results in the destruction of prostate cancers. Focal cancers may be targeted by high intensity focused ultrasound beams (High Intensity Focused Ultrasound or HIFU) and have been in clinical practice for 25 years. Developed simultaneously in the US (Sonoablate 500) and France (Ablatherm) the technique is favored by men wishing to avoid possible complications or side effects of surgery or radiation therapy. 

Treatment is usually performed under anesthesia. Energy is delivered to malignant tissue using in this instance, high frequency ultrasound waves that heats the tissue above 40 degrees Centigrade destroying the tissue.  Tissue temperature is closely monitored by sophisticated electronics to minimize adjacent tissue damage which can result in narrowing of the urethrae and obstruction of the flow of urine. Additionally, nerves involved in sexual performance may be inadvertently heated resulting in some degree of sexual dysfunction. 

A recent study reported in the Journal of Urology looked at 52 patients treated with this technique. The results are mixed. Patients included all had localized biopsy proven prostate cancers. The study defined treatment failure as recurrence on follow up biopsy at 20 months showing recurrent or higher grade tumor, metastatic spread systemic therapy or cancer specific mortality. 

There were 13 minor complications of which urinary retention was the most common.  There were no deaths and no cases of rectal injury. Of the 60% of individuals undergoing repeat biopsy, 83% had no residual tumor This study was limited in two significant ways. First, nearly a quarter of the patients underwent simultaneous “debulking” of prostate tissue by conventional surgical means in order to treat pre-existing difficulties with urination. Second, if biopsy is to be considered the outcome of importance, then 40% of the patients did not complete the study.  It did not recognize that microscopic analysis of biopsies is limited by the posttreatment effect on the gland and the gold standard for pathology has been whole gland analysis after radical prostatectomy.

VIEWPOINTS JOHN SAVARINO, DO - Medical Dir. (Apex Cen. for Regenerative Medicine) "I find the advancements of ultrasound technologies remarkable. The innovation allows procedure-based doctors (like me) to do more with procedures, because now we can see deeper and smaller things.  The philosophy of INTEGRATING modalities is definitely the way that medicine is going... and obviously using the least amount of invasiveness possible so that people recover faster and they have less likelihood of getting things like infection and other types of complications." ARA KARAMANIAN, MD - Medical Director (Prostate Laser Center) "When a patient has an elevated PSA or positive digital rectal exam, most urologists will perform an untargeted biopsy.  This generally involves 6-12 core samples from around the prostate without screening for or targeting any specific lesion.  Some call this approach "Poke and hope" given that it only has a 60-70% sensitivity for clinically significant prostate cancer.  If instead, we start with an imaging study such as a high quality multiparametric MRI, followed by a targeted biopsy, we can increase the sensitivity for clinically significant prostate cancer to about 90-95%.  In addition, minimally invasive treatment, such as MRI guided laser ablation allows a more targeted treatment approach with a lower risk of side effects." DAVID DACHINGER - Innovator (Loving Meditations: Bring Calm to Cancer)  "As a stage 4 head and neck cancer survivor, I can appreciate the challenges Jim Hunt highlights.  Upon hearing a cancer diagnosis, many patients (including me) experience a simultaneous rush of powerful emotions and mind-blowing numbness. There can be an overwhelming volume of medical information to absorb. It’s vitally important to slow down, take time to process the information, do research, and get second opinions. Having undergone painful invasive biopsies, I understand Jim's concern about infection and the potential for spreading cancer. I wish I had known there were non-invasive options like 4D Doppler imaging. I have undergone several PET, CT and MRI scans, involving IV contrasts, radioactive dyes and claustrophobic machines, all of which bring stress and “scanxiety” before, during and after the procedure.  Having the option of a non-invasive scan could save time, reduce worry and alleviate the stress while waiting for scan results (which typically take days to be interpreted by a radiologist)." JESSICA GLYNN, LCSW, CPC, CEC - Psychotherapist (JAG Wellness, LLC) "This literally just happened to my dad; the doc was 95% sure it was cancer, proceeded with surgery after catheters causing infections -- and NO cancer! Lots of crying and worries from all of us for NOTHING!  My thoughts on SCANXIETY... any time a threat to our physical health and wellbeing arises, our amygdala gets activated, driving an overwhelming flood of fear. Anxiety leads to negative and destructive reactions without any clear or immediate answers and often leads to a fear-heightened loop. Jim’s experience with cancer imaging provides immediate answers, easing these anxieties more quickly instead of going direct to a painful and risky biopsy- which also gives segmented "hurry up and wait" information.  A palliative care model could help us gain the knowledge and answers we need in as timely and cohesive way." JOHN GRAZIANO - TriAthlete / Physical Trainer (Wildwood Warriors Tri Team) "This video is actually very educational and eye opening.  We are trained to listen to conventional medicine. Sure, we also know we should always get a 2nd opinion. However, one would likely go straight to another conventional doctor.  Dr. Bard’s 3-D Ultrasound is such a benefit over the conventional methods.  Not only does it offer faster results, reducing the stressful waits, but it provides a much more reliable diagnosis.  I’ve often felt like too many doctors are “textbook diagnosers!”  I appreciate Jim for taking the time to share other alternatives. I believe these kinds of videos from real people who experience a successful alternative diagnosis provides hope for thinking out of the box and give us a fighting chance. "  JENNIFER HUNT - Patient Advocate/ Fundraiser (Fight Cancer Like A Girl) "I am Jim’s wife and I’m also a breast cancer survivor and what I hope people take away from the video is that you have to be your own advocate and research all options. I feel getting a second opinion is mandatory with a cancer diagnosis, different doctors have different opinions. This applied in my case as well I’m glad I got a second opinion. Do your research if they recommend invasive tests, we are grateful to have found Dr. Bard and his 3D imaging because especially with prostate cancer the other biopsies they recommended are very invasive, painful and can be harmful. The 3D imaging has made follow up check ups a breeze literally in minutes you get instant results. Also researching wholistic options has proved beneficial for Jim he found Chaga mushroom tea that he drinks daily along with taking supplements and his cancer is gone and has not returned."  * Opinions expressed in this VIEWPOINTS section are supportive comments about the contents of this article and are solely those from the contributors credited.

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Also published on: LINKEDIN NEWS and THE LONG ISLAND PATCH
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References & Available Links:

Dr. Mark Jones, Wading River, NY (chiropractor)

Dr. Keith Gutzmann, The Howard Beach Comprehensive Health Care Center- (www.holisticnyc.org)

Pomi-T (www.pomi-t.com)

Debbie Falborn / Chaga Island (www.chagaisland.com)

Peter Starr: "(www.survivingprostatecancer.org)
Dr. Joseph Mercola (www.mercola.com)
Dr. Robert L. Bard (www.bardcancerdiagnostics.com)

Special Thanks:

Jennifer Hunt & "Fight Cancer Like a Girl" Team

LI2Day Walk (www.li2daywalk.org)

Awareness for a Cure:

Co-Editor: Laurel Muckey / Integrative Medicine of NY

Production / Editor - IntermediaWorx inc.

Technical Advisor: Annie Brandt / Best Answer for Cancer (bestanswerforcancer.org)

Disclaimer & Copyright Notice: The materials provided on this website are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

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SURVIVING A PANDEMIC WITH PERSPECTIVE

By: Lennard Gettz

As a volunteer and survivor of the 9/11 attacks, I learned to recognize the many types of losses that are associated with disasters. This includes loss of life, property and security - but also the overwhelming loss of one's mental well-being from the trauma that comes with having something significant forcibly ripped away from you.

It is human nature and common practice to forget our blessings and take things for granted as we hyper-obsess on the woes of our adversity. It certainly does not help when everywhere you turn, headlines push the same fear-driven buzz terms about how grim our current situation appears to be.  Terms like UNPRECEDENTED OUTBREAK, UNCERTAIN TIMES, GLOBAL PANDEMIC and DEATH TOLLS echo one depressing report after the next.  Understandably, getting people to think prevention by invoking fear from contamination means highlighting the darkest motivations and the many consequences that come with it.

Having lived through an era of wars, terror attacks, mass shootings and cancer deaths, disasters have a way of delivering hopelessness like a swift punch in the gut, then followed by a ground swell of negativity and bad reactions from the murky unknowns and unexpected losses. But as impending disasters go, this may be the right time to empower ourselves with a new flavor of forward thinking and a healthy new perspective.  We need to take a major breath from all this as part of maintaining our sanity and not succumb to PANIC and the allure of fear.

1) Historical reference shows that there is always a tipping point to a better day! It may not feel that way now, and maybe worse days may yet be ahead of us, but taking on a more worldly view of any tragedy (historically) has always shown us RECOVERY, RESTORATION and a RETURN to normalcy.

2) We live in an era of ADVANCED SCIENCE: at 2020, our medical community has helped us overcome a large percentage of cancer cases, developed artificial intelligence, nano-technology, micro-processors, innovative robotics and a wide array of remarkable technologies. Outside of warp drive and time travel, there's not much we have not been able to solve when we put our minds and resources together.

3) THE INFORMATION AGE: thanks to today's communication and our global info-sharing community, finding an answer to this (and any problem) is easy access worldwide. Knowing this helps reinforce our faith in our ability to find an eventual solution, leading to our road to recovery.  This information age also redefined the sharing and pay-it-forward aspects of humankind by facilitating their ability to collaborate and problem solve on a global scale.

Hence this too shall pass.

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Yes, I agree... this too shall pass. And, as history shows us, we will recover, restore and return to normalcy. Here's a thought, though... what if each one of us can raise the bar on what's 'normal?' For example, we seem to be much more focused on self-care these days. What if daily self-care routines became part of our new normal? And, I've heard people say how much they've taken 'everyday things' for granted, until now. As a psychotherapist, I have experienced and seen the tremendous benefits of incorporating daily self-care and gratitude practices. I would love to see everyone in this world turn this crisis into a valuable lesson of turning unhealthy physical and emotional habits into healthy new ones. - Tamara Green, LCSW


Disclaimer & Copyright Notice: The materials provided on this website/web-based article are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

DOCTOR SHOPPING 101 - by Sally Kalksma

Original source: https://www.sallykalksma.com/post/doctor-shopping

People will test drive several cars, sample multiple paint colors on their living room wall, even try different hairstylists in a 10-mile radius before finding their perfect match, but people just won’t go through all that research and time to find the right doctor! I just can't understand why some people will take the time to research what type of weed wacker to buy, but then just listen to the first doctor they talk to when they find out they have a serious illness. How does this make any sense? The first vacuum we see could have the worst suction power or shortest cord. We've got to shop around, yes, even for doctors.

The first thing I did when a general oncologist diagnosed me with Multiple Myeloma 12 years ago was research. Research on the type of cancer I had, the different treatment plans available, and who the best Multiple Myeloma specialists in the world were. There is a reason why there is some saying that goes “reading is power”. As a good rule of thumb, it is ideal to get at least three opinions before settling on a doctor and treatment plan.

Having a good rapport with your physician is one of the most important things you can do for your well being. You must trust your doctor, feel comfortable with your doctor and be able to discuss ANYTHING & EVERYTHING with your doctor. You need to choose a doctor that is the right fit for you. This goes for a treatment plan as well as your comfort level too!

I am fortunate enough to live in a metropolitan area and have access to great hospitals. My health is worth driving 1-3 hours to see a good doctor. I made appointments with 2 other oncologists, both Multiple Myeloma specialists and world-renowned in their field. They both worked at different university hospitals but had a very different approach to treating me.

The first specialist wanted to immediately start me on chemotherapy. I know several other fellow warriors who see this doctor. They love and trust him, but I needed another opinion. The second specialist said he was not going to treat me until my levels hit a magic number. He explained I was still in the smoldering stage and he wanted to wait till I hit stage one. He told me I looked beautiful and to continue running & drinking. Bingo, that was the doctor for me! He watched me every 3-6 months. I did not hit that special number and start treatment until 2016. Eight healthy, fun-filled, eventful years later!

Choosing this doctor was one of the most important and smartest decisions I have ever made. I couldn’t imagine what my life would be like if I started treatment in 2008 since my husband was diagnosed with an aggressive type of cancer 6 months after my diagnosis. He underwent a lot of treatment before passing away 8 months later.

I look forward to seeing my doctor. And like all of his patients in the waiting room, we don’t mind the wait to see him. No one complains. He’s that good! Even my friends and family members who occasionally accompany me also enjoy his bedside manner.

Your doctor is not the only person you should bond with. It’s important to get to know everyone on your healthcare team. Everyone has an important roll in your life. Learn what their job is, and do everything to help make it easier for them. You’re not their only patient.

You have a job too: you are your own advocate. Do not rely on someone else to schedule that appointment or forward the referral. You do it. And keep good notes because your insurance company needs that very important number you were told for that MRI scheduled at that facility on that date by that doctor! Remember what I just wrote earlier, “you’re not their only patient”.

Here’s one more bit of advice when getting opinions and follow up appointments..... Plan accordingly. Plan time for traffic, parking, then sitting around in a waiting room. Why do you think they call it a waiting room? Duh! Bring a book, tablet, pillow. Or play “I spy with my little eyes”, a favorite game of mine on long car rides.

Speaking of cars again, If you are ever faced with a serious illness, which I hope you’re not, then get in the driver’s seat and take control! Read, research and try your best to enjoy the ride!

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ABOUT THE AUTHOR -

SALLY KALKSMA was diagnosed with Multiple Myeloma in 2008. A year later, her husband passed from cancer. She took her stress out on the stairs at work during lunch. The Multiple Myeloma Research Foundation heard about this and invited her to participate in the Empire State Building Run Up to raise awareness and funds for the MMRF. Within 5 years of competitive stair climbing, Sally became ranked 20th overall in the world and 5th overall in the nation by the World Tower Running Association. In 2016, she started treatment for Multiple Myeloma, and underwent an autologous stem cell transplant in 2017. Four months after her transplant, she ran a 5 mile race, and then competed in a stair climb. Today, Sally enjoys encouraging others going through adversity as a  cancer patient advocate,  a motivational speaker and an educational writer.  She was recently awarded a membership to the NY Cancer Resource Alliance and is now a content contributor for NYCRA NEWS.  For more information on Sally, visit: https://www.sallykalksma.com/

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Disclaimer & Copyright Notice: The materials provided on this website/web-based article are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

A Message to all fellow Cancer Survivors: “GET CHECKED AGAIN!”

A SECOND OPINION MEANS PEACE OF MIND
By: Arnaldo Silva
Edited by: NYCRA writing staff

I am writing this to all my brothers at the MBCC and all cancer survivors hoping to share the benefits of my recent health scare experience with you.

About six months ago, I found a pressured lump on my right side and my belly grew bloated like a rock. I have seen several doctors from my plan including a gastroenterologist who (I felt) undermined what I was feeling by sending me off with pills just to make me comfortable. Over time, I began to notice the lump on my right side had grown to the size of a mango. Peggy (Miller) and Cheri (Ambrose), our fearless leaders found cause for concern - enough to scramble to get more information and an appointment with cancer imaging specialist Dr. Robert Bard.

I wish to note that as a survivor of breast cancer, the stress of recurrence was overwhelming. I didn't make a fuss publicly about it partly because after breast cancer, I was told I was cancer free -- even though deep inside I've always felt "there's no such thing as cancer free". I also feared that this new condition may be related somehow.

If I learned something from this entire experience, the “Get Checked Now!” button I got from this year's MBCC conference really pushed the message about staying proactive for prevention and early detection checkups. It also meant staying alert about any possible traces of recurrence. We all need to stay vigilant against illness because cancer has been known to surprise you down the road.

Lennard Gettz of NYCRA (NY Cancer Resource Alliance) joined my case by guiding me to put my medical records together, lining up some possible options and discussing my condition with Dr. Bard and other doctors from the group as far as what my condition could be. He and my other “guardian angels” also explored how to get more specialists involved by switching my medicare from an HMO into a PPO. Cheri introduced me to Bob Wasky or the Wasky Group (NJ), a medicare expert who explained the difference and why I need better coverage than what the system threw at me during my retirement.

GETTING SCANNED
Dr. Bard was recognized by the MBCC as our first clinical advisor. His office in NYC became the first male-friendly breast cancer screening center and is most knowledgeable about men issues pertaining to breast, prostate and other cancers. He set up the “Second Opinion” program which was perfect for me because I had been checked by several doctors but I was not confident about their findings. In fact, between the (weak) coverage I had, I felt I needed to get a more trusted second opinion and a scan.

Dr. Bard was extremely thorough and I found him to be the best man for the job. He didn’t stop at the focus areas; Dr. Bard even scanned my lymph nodes, my bladder, lungs and other areas where cancer might happen. What he found was a benign tumor- what they call a LIPOMA that is not cancer related (whew!) and the bloating may be managed with a certain type of food adjustment. His set of images gave me real peace of mind and a good place to start. On the same day, I took home a copy of the scan which gave me the control I needed to address this further with others if it got worse.

This experience taught me a lot. Being alive today to learn a lesson is a good place to be! I learned to upgrade my insurance plan and how a “good deal” may be so limited when you need it most (especially for someone with a pre-existing condition).  I learned that not all doctors are the same- and settling for the doctors on your plan may not always be enough. Most importantly, I learned to never keep something like this to yourself ever again. Get other people involved, get their opinions and surround yourself with smart people who care.

When it comes to our health, TIME is everything. Like they say at the MTA, if you see something, say something... and don't stop until you're SAFE! (edited by NYCRA writing team)

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Extra: Video Seminar
Cancer Recurrence Prevention 101

Watch this FREE presentation delivered by Dr. Jesse A. Stoff, Immunology Specialist at the 2019 Male Breast Cancer Coalition Conference. It covers the major fundamentals to reduce your risk of getting cancer or the recurrence of cancer. Seminar Link 

Disclaimer & Copyright Notice: The materials provided on this website/web-based article are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

FROM ADVERTISTY AND EMPATHY- THE LIST WAS BORN!

Autobiography by: Nancy Novack

I was diagnosed with stage IV ovarian cancer on April 29, 2004. It had metastasized into my liver. I was too happily innocent about the cancer world and I said two now-remarkable things: “Thank goodness, it is not appendicitis,” and “What is stage V?”

This is the story of my evolution from a very shocked and frightened cancer patient with a form of cancer that has earned itself a lousy reputation.

My simple and profound wish is that no one will ever go through cancer alone. I want every man, woman, teenager, and child who has to ‘walk the walk’ to have a hand to hold from someone who has been there, who understands the cancer mystery, and who will hang in there when times are tough.
I suppose my mission since my “cancer journey” is all about determining the unmet needs of cancer patients, especially the emotional aspects, and do my best to find a way to fill them. The path started with finding ways to assist patients financially, moved to a call-to-action in the community in which I lived, then the wild and wonderful adventure Nancy’s Club for the kids whose lives were touched with cancer, then my book I Am With You: Love Letters to Cancer Patients with 42 cancer survivors and caregivers for newly-diagnosed patients, and now my newest venture of developing a comprehensive national directory of integrative healing practitioners who offer their services (and their souls) to deepen the healing process.

NANCY'S LIST exists because of the big hearts of so many people who embrace the imperative that we need to stand up to cancer … with boundless love and compassion and inspiration … and take care of the many persons who are living with cancer, these resilient souls who are our true teachers.
I am oftentimes asked what I did that was so unique, so mysterious that I survived a lethal dose of cancer, the silent killer as ovarian cancer is often called. I was extraordinarily fortunate to have an excellent psychologist who worked closely with me to define and refine my personal relationship to my own cancer. I was blessed with a magnificent A-team of friends and family and so many angels that embraced me. For me, the opening of my heart to new loves and old brought forth an attitude of blessed gratitude that I had never known before. When I read and re-read the stories written by cancer survivors on my website, I see the universality of the attitude of gratitude in the process of healing.

What really healed me? Trust.

My relationship with my Stanford oncologist Dr. Branimir Sikic, his courage, caring, intelligence, and unwavering commitment to get me well. On that very first night, he told me, “Yours is a very bleak diagnosis. It will be a rocky road. But hang in there. I think I can help you. I am with you.” Those words speak to his profound compassion and they define the essence of this man. Those four words are my four favorite words in the world. They sustained me, gave me hope, taught me the inevitable power of human connection in the healing process.

He looked around the room, crowded with my friends and loved ones, and said, “When your loved ones go home tonight and you start to freak out about today, here is my home phone number. Feel free to call me.” I did, at about 2:30 am. Brandy was as gracious and generous in that phone call as he has always been, ever since.

He never dismissed my calls or my fears and, rather, guided me through the next step. Even when he was in his hometown in Croatia, he made the critical decisions about my treatment. When the oncology team was considering a liver transplant, he weighed in daily with his directives. No surgery because of Brandy. We did not do the transplant. And all is well.

Few doctors have said to their patients what Brandy once said to me. I wish they would. “This is very tough. I am giving you very aggressive treatments. If you are on antidepressants, double them. If you are not on them, get on them. And find yourself a solid psychologist, preferably someone who has been through cancer.”

Brandy made it possible for me to really trust — in him, the healing process, the world.
During my 21 long aggressive chemo sessions, I invited fellow cancer patients to tell me their stories. (I am a psychologist … I like to talk). They shared feelings of helplessness and hopelessness. They suffered intense feelings of isolation, distrust, anger, and profound sadness. They worried the very most about money … about bankruptcy, the lack of funds to cover the enormous medical expenses and their medications.


I was profoundly troubled that these kindred souls were experiencing so much fear and anxiety about their finances. How would that reality affect the possibility of their recovery? I vowed to make a difference. I knew that financial assistance was out there somewhere. I was determined to make it accessible. I received my 501 ©(3) non-profit status in 2006 and launched my first website. Nancy’s List was intended to be simply a list of financial resources. My intention was to educate cancer patients and their loved ones and the healing professionals who serve them about the accessibility of these programs.

When I was diagnosed in 2004, I was living in Mill Valley in Marin County, right across the Golden Gate Bridge from San Francisco. There was an especially high incidence of breast and prostate cancer in the area. Despite the major efforts to determine the cause and laughing over some very strange speculations (‘The women drink too much white wine’), no one knew why. Families and friends were deeply affected … and in fear. I had many meetings with the cancer care organizations to see what was needed to support those who were living with cancer.

Quite serendipitously, 5 or 6 women independently came to visit with me. Many of their friends had recently been diagnosed with breast cancer. These were strong, healthy women in their early 30s. They were yogis, vegans, and soccer moms. Many were quite angry and depressed … they had assumed that they were not vulnerable to cancer since they ate kale every day. I collected the group of very concerned women, cooked them very healthy meals (few with kale), and we brainstormed about what we could do for their friends and for themselves. They called themselves Nancy’s Angels.

I envisioned a Call-to-Action to develop a community partnership to meet the epidemic of cancer that our community was facing. We knew that we could not rely on the healthcare system to focus on the many emotional, psychosocial, and spiritual challenges that come with a cancer diagnosis. We could reach out and support the courage, bravery, and resilience of our neighbors.

Through the Nancy’s List programs, cancer patients and their loved ones found community, strength, courage, pleasure, and healing relationships. There is healing power when one is connected to the larger community, especially when you are experiencing fear, loneliness, isolation, and uncertainty. It means everything to know your neighbors are looking out for you. And it is a very good thing to meet kindred souls along the path.

"It does take a village to handle this crisis and we built a magnificent one."

Another project …I Am With You: Love Letters to Cancer Patients is a powerful book for the newly diagnosed patient, for those who are going through treatment or have entered remission, for loved ones, and for everyone else in the world.

I created the anthology with 42 authors who truly share my vision, my passion, my mission. We bring hope and courage to patients when they need inspiration, when they are feeling the loneliness and fear and anger and loss that go hand in hand with a cancer diagnosis, when they need comfort and a warm heart and a hand to hold. Our book offers connection to kindred spirits who ‘know’.

IAWY is truly a love letter. Our wish is that this offering of hope and healing will sustain cancer patients through those first frightening nights and every night thereafter. This is the spirit in which this anthology was written …  by, and for, amazing cancer patients everywhere.

My latest project … I want cancer patients to have the opportunity to experience healing other than dreadful visits to the infusion rooms, radiation offices, and more. I want to educate patients and healing professionals about the enormous benefits of integrative healing services AND the accessibility of these therapies.

I am creating a national directory of cancer centers and practitioners who complement traditional cancer treatments. I am especially interested in adding more psycho-oncologists, marriage and family therapists, trauma and EMDR specialists, massage therapists, practitioners who work with clients in the dying process (as well as dealing with anger, grief and loss), creative modalities (drumming, art, dance, writing, etc.), pampering, nutrition, fitness … just about everyone who serves those who are living with cancer.

I invite you to participate in the Nancy’s List community.


Disclaimer & Copyright Notice: The materials provided on this website/web-based article are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

What is "GET CHECKED NOW!" ?

THE TWO‐PART MISSION TO SAVE LIVES
Fact: Cancer is a grim and dark topic that no one enjoys talking about. It’s not uncommon for many to BURY the idea that you could be NEXT-- preferring to believe cancer can happen to someone else. But history shows that CANCER WILL ALWAYS SURPRISE YOU! This is why creating a ground attack and a crusade needs to happen to "get the drop on cancer."  We can do this by staying smart with awareness, get vigilant with a healthy lifestyle and keeping our eyes open for this sneaky disease before it catches you!

Any cancer survivor, cancer specialist or patient advocate will tell you that fighting cancer requires a ONE‐TWO PUNCH comprised of EDUCATIONAL AWARENESS to reinforce a proactive lifestyle and the right information of what’s truly available in the treatment world. The second half of the battle is taking on the regimen of Early Detection and Prevention through REGULAR CHECKUPS & SCREENING. That’s the smarts behind the ‘GET CHECKED NOW!’ message and our public message to our community.



We have a growing list of partners that are now endorsing our message- including:

• "Awareness for a Cure" - Recurrence Prevention Program
• Integrative Medicine of NY - "Stay in Remission"
• Male Breast Cancer Coalition - "Breast Cancer Does Not Discriminate"
• NYCRA: NY Cancer Resource Alliance 
• The First Responders Cancer Resource 
• WBAB's Plugged Into Long Island
• The Pain Resource Alliance
• Bard Cancer Diagnostics
• ImplantScreening.com
• The AngioFoundation.com
• CousinSal.org
• IvyGene Cancer Testing Lab
• LI2DAY WALK

BE MY HERO- GET CHECKED NOW!
"In my tenure as one of the founding directors of the Male Breast Cancer Coalition, I have met so many brave and inspiring men who have come forward about this plaguing disease. Against the odds, they stepped up to get a complete diagnosis, underwent the process of cancer treatment and are still with us today- walking this earth to spread the word to others about how REAL Male Breast Cancer truly is!

Recently, I have met a growing number of FIREFIGHTERS in our area who fell prey to this disorder. As OCCUPATIONAL HAZARDS go, first responders carry some of the highest risk for cancers due to the exposure to some of the most horrible toxins. But the real danger is the stigma about getting Breast Cancer that keeps them from getting checkups. Thanks to NYCRA's "Get Checked Now" campaign, more and more are getting our message on time to address the cancer, and to stay vigilant about EARLY DETECTION & PREVENTION about this cancer and all other cancers that threaten our lives."

- Cheri Ambrose, www.mbcscan.com & www.malebreastcancercoalition.org


Disclaimer & Copyright Notice: The materials provided on this website/web-based article are copyrighted and the intellectual property of the publishers/producers (The NY Cancer Resource Alliance/IntermediaWorx inc. and Bard Diagnostic Research & Educational Programs). It is provided publicly strictly for informational purposes within non-commercial use and not for purposes of resale, distribution, public display or performance. Unless otherwise indicated on this web based page, sharing, re-posting, re-publishing of this work is strictly prohibited without due permission from the publishers.  Also, certain content may be licensed from third-parties. The licenses for some of this Content may contain additional terms. When such Content licenses contain additional terms, we will make these terms available to you on those pages (which his incorporated herein by reference).The publishers/producers of this site and its contents such as videos, graphics, text, and other materials published are not intended to be a substitute for professional medical advice, diagnosis, or treatment. For any questions you may have regarding a medical condition, please always seek the advice of your physician or a qualified health provider. Do not postpone or disregard any professional medical advice over something you may have seen or read on this website. If you think you may have a medical emergency, call your doctor or 9-1-1 immediately.  This website does not support, endorse or recommend any specific products, tests, physicians, procedures, treatment opinions or other information that may be mentioned on this site. Referencing any content or information seen or published in this website or shared by other visitors of this website is solely at your own risk. The publishers/producers of this Internet web site reserves the right, at its sole discretion, to modify, disable access to, or discontinue, temporarily or permanently, all or any part of this Internet web site or any information contained thereon without liability or notice to you.

RECURRENCE PREVENTION FROM A 3-TIME CANCER SURVIVOR: VANESSA SILVA

My name is Vanessa Silva. I was diagnosed with breast cancer in 2007 after my father was first diagnosed with breast cancer where he was identified as BRCA2 positive.   I found out in a very roundabout way. I only went for a check-up because my doctor wanted to be proactive, and she just wanted to confirm that I was healthy.  More importantly, she wanted to check to see that I wasn't carrying the gene. But during the mammogram, they told me to go upstairs to see my doctor.  Right then and there I knew they were going to tell me I had cancer. I spoke to my doctor and she confirmed it.

I can remember crying- then saying, "Okay, you need to get yourself together. There's options. They said it was at stage zero. It's not a death sentence. We're going to do what we have to do... but you're probably going to be BRCA2 positive, as well."  The battle for me started with chemotherapy- but not radiation. In a matter of weeks, they realized the cancer was more aggressive than they thought, and it wasn't at stage zero after all because it already had gone to the lymph nodes.

RECURRENCE: PART 1

During the treatment process, I pushed to do my part and changed the way I lived starting with the way I ate. I exercised, I stopped eating meat and I did everything by the book ... and sure enough, I was told I was cancer free!.  So after five years, I felt it was safe to go back to old habits and eat the things I missed the most – including meats. I was still working out, but admittedly, junk food managed to creep its way into my system.

My cancer came back after roughly eight years. 

One day, while taking a shower, I decided to check and feel for any lumps- just to make sure everything's okay.  Surprisingly, I felt a lump. It was small but experience says to keep an eye on it.  By September, it grew to the size of a pea and it was getting bigger.  My doctor elected a sonogram then an MRI just to confirm that my cancer came back.

This time, I was angry, because I felt like I did everything I needed to do. I did the chemo. I honestly didn't believe my eating would have brought my cancer back.  They recommended four treatments of chemo, but this time it was stronger. For the first time, I had to take Taxotere, and then, this time, I had to do the AC.

I looked at my husband and said, "This is a joke. I feel like I'm being punked… we're going to do this again!" I started the first chemo treatment and became really, really sick. I was hospitalized for a week. I could not tolerate the chemo's side effects; it was way too strong. And I told them, "What are my options, because I can't do four treatments with the way I was feeling."  It really hit my body hard- so they redirected me to 6 weeks of radiation treatments.

So again, I stopped eating meat, stopped sugar, went back to the juicing, I did my daily routine of walking (I live by Central Park, so I would walk the reservoir).  I was religious with my health especially during and even after I was done with the treatments.

But a year later, I kept up with my self exams to make sure there were no lumps, and then ended up finding another one - this time on the right side! Very small again, underneath my breast - and just like the last one, it started to grow.

For the third time, the cancer had come back.

Once again, I underwent surgery to remove the cancer. It did not go to the lymph nodes, so they didn't recommend chemo this time around, but I had to do radiation again for six weeks. This was my reality. I had cancer in 2007- then again in 2014, and then the cancer came back in 2016.

What was confusing to me was that this time, I was so diligent about prevention- not having any meat, and constant juicing and exercising.  I feel as if my body produces cancer cells much faster than a regular person. I just have to be more vigilant with checking myself.

I try to make sure that I'm stress-free, that I don't put myself in situations that would make my immune system just crash.  My doctor and I are both very diligent about checkups and often do sonograms at the slightest concern. I see my breast surgeon every six months. And now, she's finally pushed it to a year, so I'm so happy with that.

FOOD 101: GOING 'CLEAN' AND ORGANIC
I think, meat plays a huge part in all of this because of the hormones that are being injected into them.  I do my best to buy products that say Non-Hormones, No Antibiotics, etc., however, how much of that is true.  I was convinced that I needed to stop eating meats all together and to stop putting all of these processed products into my body and start eating a much healthier diet.

Eventually, I would like to become a vegan, but I know there's so many things that I really enjoy eating, like eggs and cheese. But slowly, I've been pulling away from eating eggs. It's been a year since the last time I’ve eaten eggs, but cheese is a hard one to quit. I'm just trying to eat a more "clean" foods-- a lot more vegetables, a lot more fruits, and making sure that I wash them, and they're organic.

Organic and gluten-free was the way to go for me! I don't drink dairy milk anymore only almond milk. I'm really trying NOT to introduce the bad stuff to my children. Two of them are already grown, I really try to give my youngest one ZERO red meat except maybe once a month.  Sometimes, it's turkey or chicken, but even that, we've really pulled away from. I try not to be as restrictive with them because they're young, and they should make their own decisions later, however, I want them to be knowledgeable of what they put into their bodies.  Zero sugar is hard to do but we try to stay away from candy, donuts and pastries.

(End of part 1)

...............................................................................................................................................................
This article is a feature interview with Mrs. Vanessa Silva, 3x Breast Cancer Survivor and ambassador of the "GetCheckedNow!" program by Awareness for a Cure.

Extra: Cancer Survivorship
Strong evidence suggests that physical activity reduces the risk of several cancers, including breast and colon cancers.  Worldwide, around 10% of breast and colon cancer cases are linked to a lack of activity.3 Being physically active also helps prevent overweight or obesity, which may reduce a person’s risk of certain cancers related to excess body weight. In addition to helping prevent cancer, physical activity is also important for cancer survivors. One-third of cancer deaths in the United States are linked to physical activity and dietary factors. Cancer survivors who are physically active have a better quality of life and better physical fitness than survivors who are inactive. In addition, studies suggest that adults with breast or colon cancer who are physically active are less likely to die prematurely or have a recurrence of their cancer. Physical activity may also play a role in reducing adverse effects of cancer treatment.  (see complete article)

Sponsors & Special Thanks:

1) (Article sponsor 1) Male Breast Cancer Coalition: www.malebreastcancercoalition.org
2) (Article sponsor 2) Integrative Medicine of NY: www.IMOFNY.com
3) (Article Sponsor 3) Male Breast CancerScan: www.MBCScan.com
4) (Publisher) Awareness for a Cure: www.AwarenessforaCure.org
5) (Co-Publisher): NY Cancer Resource Alliance:  www.NYCRAlliance.org
6) (Associate Sponsor) LI2Day: www.LI2daywalk.org
7) (Associate Sponsor) IvyGene Labs: www.ivygenelabs.com
8) (Associate Sponsor) Cell Therapy Center of NY: www.cellsforhealing.com
9) The BioFoundation for Angiogenesis Research and Dev.  www.angiofoundation.org
10) JAG Professional Coaching: www.jagtheracoach.com

Technical References
1) https://www.cdc.gov/cancer/dcpc/research/articles/survivorship-supplement.htm
2) https://www.cdc.gov/genomics/gtesting/egapp/recommend/gep.htm
3) https://www.cdc.gov/cancer/survivors/pdf/plan.pdf
4) https://www.cdc.gov/cancer/dcpc/prevention/policies_practices/physical_activity/index.htm


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